Sunday, June 10, 2012

It's great to be five!


Keandre is a big fan of Bill Cosby's 'Little Bill'. If you are familiar with the show, you'll recognize the saying, "It's great to be five!"  March 10th was Keandre's big day, and he shouted it with pride. :) 

His breakfast of choice was a plateful of hash browns.  Can you see his excitement?

Keandre asked for an easy-going party at a local park.  He requested that everyone wear his favorite color, green, and that we serve only foods that are safe for him to eat.  I gave all the parents a heads-up that this party would be a little unusual....

It worked out great!  The kids all had great attitudes about the food.  We called it an 'eat like me' party, and served fresh-sliced apples, rice cakes, roasted garbanzo beans, and green beans. 

There were meaningful conversations amongst the parents and kids about how these are foods that are safe for Keandre, and that he can't eat most of the foods that they eat.  Empathy grew. :)

 Face painting was the highlight of the party.  My creative sisters-in-law came up with some great ideas, and the kids were all impressed.

Artan and Lucas contributed to the animal theme that caught on well with the boys.  (Most of the girls were princesses.)

Dessert was rice crispies made with homemade marshmellows. Keandre ate at least five of them, and wants me to make them again soon.

We all went home tired and happy.  Our little tiger declared the day a huge success! :)

Saturday, June 9, 2012

the little girls


I just ran across this picture from a couple months ago.  I think we'll have to frame this one for Granny & Papa!  The girls were having a cousin playdate while the older kiddos were away at school.  I can't wait to see the memories these girls create over the years.  They are such characters!  Madeline and Brooklyn are 3 weeks apart, and Khiana is almost 12 months older. 

Friday, June 8, 2012

Funny Friday

Just a few of the funnies around here lately....

(March '12)
Lucas got tired of holding the phone.

(April '12)
Brooklyn and cousin Madeline dressed the tortoise in baby girl pants.

Keandre and Nichole got married.  And had a child.  All in the same hour.

They were the typical, doting parents, quite proud of their cape-wearing tyke.

Uncle Ian's tortoise was part of our Easter egg hunt.  He stayed in this position for a good 15 minutes.  So cooperative! :)

A couple tigers and a cheetah planned a playdate...

...and together, they learned the joys of photography in motion.

(May 2012)
Brooklyn's hair took on a life of its own.
And she turned two! :)

 Keandre tried out a new sleeping position. He successfully slept on top of legos, a heat lamp, and his guitar. (Yes, their bedroom floor is usually that messy. I gave up -- and that is why they have a baby gate in their doorway! :)

So....what's funny in your life these days?

Sunday, June 3, 2012

Oatmeal, glorious oatmeal

In May, we introduced organic, gluten-free oatmeal for Keandre's latest food trial.  That day, Keandre skipped around the house yelling at the top of his lungs, "Hooray!  Oat-a-meal!  I love oat-a-meal!"  Followed by, "It's yummy, right?  I think had it once a loooong time ago." :)

Because Eosinophilic Esophagitus and Eosinophilic Gastroenteritis (EE & EGE) are allergic conditions, every food has to be trialed separately until you know whether it's a 'safe food', meaning it doesn't trigger the growth of eosinophils, or white blood cells, in the digestive track.  The only way to know for sure if there are eosinophils is to schedule an endosocopy with biopsies, but you can also tell if the food is a problem from other symptoms. 

Within 1.5 weeks after we added 'oat-a-meal', Keandre was flaring.  Hiccups, stomach pain, reflux, and then vomiting returned.  Some families keep it up longer, and scope to be sure it's really 'a fail' (checking for evidence of eosinophils), but I just can't do's too hard on him.  It's sign enough if I remove the food from his diet and he recovers. 

Oatmeal was a huge loss -- an emotional one for both of us.  My Mama heart breaks to see my son suffer, and I struggle with what to feed him with this limited diet.  He is grieving the loss of a food that he loved, and this loss is forcing him to face how different his life is from other 5-year-olds.

Please continue those prayers.  Keandre's body has rejected 7 of the last 8 foods we've trialed in the last 6 months, so I'm a little scared to introduce anything new for a while. 

For now, we're trying some new allergy treatments, in hopes that it will help his body tolerate more foods.  More on that later....

Foods that caused him to flare so far this year: lentils, cilantro, chives, green onion, leeks, celery, and now oatmeal.  (For the EOS moms who read here. :)

Please, please pray that pear continues to be safe for him.  He loves them!
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