We'd appreciate prayers for Keandre tomorrow. His reflux has been terrible lately, and medication has not resolved the issue or prevented the pain and vomiting that he has suffered from since he was only a few months old. We'll be spending the day at the local Children's Hospital, and at 11am he is scheduled for an upper endoscopy. We're praying that his doctor will have answers for us soon.
When I told Keandre tonight that his doctor is going to put a tiny camera inside him to take pictures and see what's going on in there, he thought that was hilarious! "A camera? In my tummy?!?" Ah, I love preschoolers. :)
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Monday afternoon update: We are home from the hospital. Keandre's doctor met with us for quite a while to discuss the results. Unfortunately, he didn't have good news for us. Keandre has a lot of inflammation and damage in his esophagus. It is likely that he has Eosinophilic Esophagitus (EE). We will know for sure in a few days, when his biopsy results are in. It's a bit too much to explain right now, so I'll do a new post when we know more. For now, we are resting and thankful to be home again.
Thank you for all your prayers and support. The journey is far from over, but we are trusting God has a plan for our sweetie and will guide us through it all.
A big thank you to Sarah, Katrina, and Catherine for your help with Brooklyn, Destany, & Lucas. They had a wonderful time with you!
Keandre drove a hummer through the hospital to the room where he had the procedure. He was smiling SO big. He couldn't believe he got to do that. We couldn't either! ;)
He was FAST! Nurses and doctors were jumping out of the way to avoid getting hit. Andy & I couldn't stop laughing.
He crashed a few times. We noticed that the walls and doors all have sheets of metal to protect them. Now we know why.
Keandre and his doctor, in the recovery room after he woke up. Keandre says about Dr. S., "I like how he talks. He talks funny!" (Dr. S. is from Ghana.)
We feel blessed, and incredibly thankful that we have wonderful doctors taking care of Keandre!
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Wed. night Update: Keandre is having a very rough week so far. We covet your continued prayers. He typically has a 2 - 4 days per week where is vomits a few times, and struggles with coughing and gagging. Well, we are now taking it to a new level. Monday after the procedure he ate just fine, and he quickly made up for the morning of fasting. But then yesterday (Tues.) he threw up so many times I lost count. He tried eating several times, and was successful in keeping food down only one time -- a whopping 1/2 cup of applesauce. It was a difficult day, and heartbreaking for us to watch him suffer like this. Today was a little better, but he is still coughing and gagging regularly. He will be sleeping in our room indefinitely, as he wakes up coughing/gagging and struggling to breath normal. The poor little guy is exhausted.
The doctor has us giving him the Prevacid and Zantac still, but it's not helping. We are waiting for news on the biopsies as well as news on whether there is more we can do to help him.
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Friday morning Update: Thank you for your continued prayers. Thursday Keandre was a little better, and today he is MUCH better! He is still coughing and gagging occasionally, but he is eating well and keeping most of it down. We are still waiting for test results.